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Support Groups

April 7, 2010 2 comments

Support GroupHello and my apologies for the long week+ without any posts…The topic for this week is Support Groups

Most hospitals – even local and regional medical centers which are not affiliated with teaching centers – have at least one or two cancer support groups.  These are for the more prevalent cancers like lung, breast, colon or prostate.  Few hospitals have support groups for liver cancers and fewer still for cholangiocarcinoma.  So what is a cholangiocarcinoma patient or family member to do?

Well, there are several options.  First, you can try to join a general Cancer group if one exists.  If it is a larger Regional Hospital, they may have a GI Cancer or Liver Cancer Group for all types of liver CA (Hepatocellular Cancer, Cholangio, etc.) or a PanCan group for Pancreatic Cancer;  While not the same, many of the chemotherapy regimens and surgical techniques used in treating Pancreatic Cancer are similar to those employed in treating cholangiocarcinoma, so there are some similarities there.

An alternative option is to form your own Support Group.  This may sound like a daunting task but it is really do-able and just takes some leg-work on your part.  Let me address a few FAQs to start with:

What exactly is a Support Group?   A Support Group is a small gathering of patients and caregivers who share common experience with this disease; People who truly understand what you’re going through and can relate.  Read more…

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Atlanta Area Cholangiocarcinoma Patient Support Group

March 4, 2010 1 comment

         

Peach State Support Group

New Atlanta, Georgia CCA Support Group

 

I realize that this is specific to those living or having treatment in the Atlanta, Georgia area but wanted to help get the word out about a new support group that will be meeting at Emory University Hospital in Atlanta on the third Friday of each month beginning in April.         

It is open to cholangiocarcinoma patients and their family/caregivers and will be moderated by a member of the Emory University Social Work Team.  Support groups are a great way for patients and caregivers alike to get together and talk about issues they face in fighting the disease, dealing with treatment and coping in general.        

Here are the details:        

What:   Cholangiocarcinoma Patient & Caregiver Support Group        

Where: Emory University Winship Cancer Center, Room C3018      

The Winship Cancer Center is located at 1365-C Clifton Road NE, Atlanta, GA 30322. Click here for directions: http://www.mapquest.com/mq/7-IGP9Xkevn*uyHkksF738        

When:   Third Friday of Each Month (Starting April 16th) from 12:00noon to 1:30pm        

Contact: Leave me a comment or email me if you need further information.